Blogging in my head since 1999

Monday, September 19, 2011

Parenting gets scary

I am scared. I am normally a pretty unflappable parent. I worked in pre school, I was an RA in college. I've seen some hairy stuff. I was calm and collected when D nearly cut the tip of his finger clear off. It takes a lot more than a sudden fever or hacking cough to send me running to the emergency room...but this time I am worried.

In June, near the end of the school year, DA had a strange fainting episode. I am unsure of the exact details because I got three reports and they aren't in sync. Either he had just eaten snack or was going to eat snack when he became unresponsive. According to his aid, his eyes rolled up in his head and he didn't respond. According to the teacher, he responded immediately, then blanked out again. I don't know if he sat down, or hit the floor. He had either just come back from gym or had come back from gym a half hour ago. Either way, I thought that he had a fainting episode from lack of food and over heating. He looked like hell when I got into the classroom, and the nurse said that he was looking better than he had looked, which freaked me out a little. They sent him to the hospital by ambulance, and I couldn't ride with him because I had to get his twin who was waiting anxiously in his classroom to be picked up. (Thank heavens for the classroom aid, Mrs H, because she rode with him and held his hand.)

He recovered from the incident. Nothing at all was found to be wrong with him. Naturally, I followed up with his pediatrician who said he couldn't find anything out of the ordinary, but wanted an EEG done to rule out seizure activity. I hounded the doctor's office all summer, but I couldn't call the hospital myself to make an appt, it had to be done through the office. In any case, they still didn't have an appointment for me in September. Then my little boy had another fainting incident at school. It was exactly the same as the last time, except he didn't become unresponsive.

Now the doctor is singing a different tune. It was amazing how quickly they got him an appointment to get an EEG done. We saw a different doctor in the practice this time, and he told me that boys this age don't faint, that there is probably something else going on. And that something could be serious. It may be his brain, or it may be his heart, but he thinks it is unlikely that it was just not eating enough and being overheated. Now we wait. We wait for the results of the EEG...which may or may not have to redone because he did wiggle quite a bit. We wait for his cardiologist appointment, which isn't until the end of October. We wait, and we hope that nothing else will happen between now and October...or now and forever, which would be my first choice. We watch him like hawks, and ask him how he is feeling, and tell him to eat, but nothing short of an answer to why this is happening is going to make us feel any better. And you all know how bad I am at waiting.

4 comments:

  1. oh, goodness, this is terrible. i will send you and your munchkin all the positive thoughts i can. please keep us updated.

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  2. oh my, I am so sorry to read this as well. Thinking positive thoughts for you and your little one during your wait. oxo

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  3. I'm so sorry this is happening. The waiting must be so incredibly hard, and that is such a long time. Saying prayers for you that everything is OK.
    Hugs...

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  4. You must be soooooo scared to not know what's happening to your little boy. I hope it's something he will just "grow out of" or somesuch.

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